Perception of doctors, patients and family members about the role of clinical empathy in promoting patient rights in the context of disclosure

Authors

DOI:

https://doi.org/10.21527/2176-7114.2025.50.15803

Keywords:

Empathy, Disclosure, Patient Rights, Patient, Adverse Event

Abstract

The present article aims to analyze the existing connections between clinical empathy and patient rights, proposing foundations to build a theoretical basis for the branch of Clinical Bioethics that is based on patient rights and clinical empathy. To this end, a descriptive-exploratory research was conducted with a qualitative approach, involving 4 doctors who deal with the topic of disclosure and 5 patients and family members who experienced an adverse event in the context of health care.All participants are adults and legally capable. Disclosure is a complex and multifaceted approach, encompassing a communicational process and an apology. In the event of an adverse occurrence, disclosure must be adopted by the health organization. Thus, from its beginning to the end, it is a process permeated by emotions, given that some harm has been caused to the patient and their families, and, in certain situations, it has also affected the professional directly involved in the event. Therefore, it is important to investigate the role of empathy in the disclosure process, especially regarding the fact that the empathy of health professionals is subject to a choice process, in being empathetic or not in the disclosure process, in empathetic communication, and in the apology, which can directly affect all those involved.

References

1. Albuquerque A. Disclosure de incidentes de segurança do paciente sob a ótica do Direito do Paciente. Cadernos Ibero-Americanos de Direito Sanitário. [Internet] 2022 Sep 20;11(3):70–90. [citado em 11 fev. 2024]. Disponível em: https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/925

2. World Health Organization (WHO). Patient Safety. [Internet] 2023. [citado em 13 jan. 2024]. Disponível em: https://www.who.int/news-room/fact-sheets/detail/patient-safety#:~:text=The%20harm%20can%20caused,2.6%20million%20deaths%20(4)

3. Dhamanti I, Ni Njoman Juliasih, I Nyoman Semita, Nor Azazi Zakaria, Guo H, Sholikhah V. Health Workers’ Perspective on Patient Safety Incident Disclosure in Indonesian Hospitals: A Mixed-Methods Study. Journal of multidisciplinary healthcare. [Internet] 2023 May 1;Volume 16:1337–48. [citado em 13 jan.2024] . Disponível em: https://pubmed.ncbi.nlm.nih.gov/37204999/

4. Leape LL. Making Healthcare Safe. Cham: Springer International Publishing; 2021.

5. Makpal Alchimbayeva, Natalya Glushkova, Vugar Mammadov, Sholpan Aliyeva, Azhar Dyussupova, Almas Dyussupov & Oxana Tsigengagel (2023): The intention to disclose medical errors among health professionals in Kazakhstan, International Journal of Healthcare Management, DOI: 10.1080/20479700.2023.2190635

6. Gallagher TH, Hemmelgarn C, Benjamin EM. Disclosing medical errors: prioritising the needs of patients and families. BMJ Quality & Safety [Internet]. 2023 Oct 1;32(10):557–61. [citado em 13 jan. 2024]. Disponível em: https://qualitysafety.bmj.com/content/32/10/557

7. Albuquerque, A. Empatia nos Cuidados em Saúde: comunicação e ética na prática clínica. Rio de Janeiro: Manole, 2023.

8. Guidi C, Traversa C. Empathy in Patient care: from “Clinical Empathy” to “Empathic Concern.” Medicine, Health Care and Philosophy [Internet]. 2021 Jul 1;24(4). [citado em 13 nov. 2023] Disponível em: https://pubmed.ncbi.nlm.nih.gov/34196934/

9. Laarman BS. De rol van het recht als er iets misgaat in de gezondheidszorg [Internet]. Vrije Universiteit Amsterdam. Den Haag. [Internet] 2022. [citado em 12 nov. 2023] Disponível em: https://research.vu.nl/en/publications/de-rol-van-het-recht-als-er-iets-misgaat-in-de-gezondheidszorg

10. National Patient Safety Office. National Open Disclosure Framework (2023). Disponível em: file:///C:/Users/User/Downloads/273442_1b63c986-f080-4c78-86e2-3e3d2a16fd22.pdf.

11. Albuquerque, A. Disclosure nos Cuidados em Saúde: comunicação aberta de eventos adversos. São Paulo: Dialética, 2024.

12. O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for Reporting Qualitative Research. Academic Medicine. [Internet] 2014 Sep;89(9):1245–51. [citado em 13 nov. 2023]. Disponível em: https://journals.lww.com/academicmedicine/fulltext/2014/09000/standards_for_reporting_qualitative_research__a.21.aspx

13. Vinuto J. A amostragem em bola de neve na pesquisa qualitativa. Tematicas. [Interne] 2014 Dec 30;22(44):203–20. [citado em 03 nov. 2023]. Disponível em: https://econtents.bc.unicamp.br/inpec/index.php/tematicas/article/view/10977

14. Rocha D, Daher MDC, Sant’Anna VL de A. A entrevista em situação de pesquisa acadêmica: reflexões numa perspectiva discursiva. Polifonia [Internet]. 2004. [citado em 13 nov. 2023] Disponível em: https://periodicoscientificos.ufmt.br/ojs/index.php/polifonia/article/view/1132

15. Minayo, MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. São Paulo: Hucitec, 2004.

16. Howick J. Empathic doctors have more satisfied patients – new study. 31 jan. 2024. Disponível: https://go.gale.com/ps/i.do?p=HRCA&sw=w&issn=&v=2.1&it=r&id=GALE%7CA781076566&sid=googleScholar&linkaccess=abs&userGroupName=anon%7Ef07ffc10&aty=open-web-entry.

17. Halpern J, Fraga J. 2022. Empathic curiosity is a way for health-care professionals to manage stress. New York: Washington Post. Disponível em: https://johannashapiro.org/wp-content/uploads/2022/05/EMPATHIC-CURIOSITY.pdf. Acesso em: 20 jun. 2024.

18. Howick J, Rees S. Overthrowing barriers to empathy in healthcare: empathy in the age of the Internet. Journal of the Royal Society of Medicine, 2017; 110(9): 352-357

19. Howick J, Mittoo S, Abel L, Halpern J, Mercer S. A price tag on clinical empathy? Factors influencing its cost-effectiveness. Journal of the Royal Society of Medicine. [Interne] 2020 Sep 15;113(10):389–93. [citado em 12 nov. 2023]. Disponível em: https://pubmed.ncbi.nlm.nih.gov/32930031/

20. Rorty R. Human Rights, Rationality, and Sentimentality [Internet]. [citado em 12 jan. 2024]. Disponível em: https://web.archive.org/web/20030514062818id_/http://homepage.newschool.edu:80/~quigleyt/hr/rorty.pdf

21. Hunt, L. A invenção dos direitos humanos. São Paulo: Companhia das Letras, 2009.

22. Von Harbou F. A Remedy called Empathy: The Neglected Element of Human Rights Theory. ARSP: Archiv für Rechts- und Sozialphilosophie / Archives for Philosophy of Law and Social Philosophy [Internet]. 2013 [cited 2023 Dec 19];99(2):133–51. [citado em 14 nov. 2023]. Disponível em: https://www.jstor.org/stable/23681063

23. Phongpetra P. The Duality of Empathy and Human Rights The Duality of Empathy and Human Rights [Internet]. 2011 [citado em 13 nov. 2023] Disponível em: https://digitalrepository.trincoll.edu/cgi/viewcontent.cgi?article=1112&context=trinitypapers

24. Albuquerque, A. Manual de Direito do Paciente. CEI: Belo Horizonte, 2020.

25. Mahmoodi A, Khani L, Ghaffari M. Relationship between Empathy and Spiritual Intelligence with Nurses’ Attitudes towards Patients’ Rights: The Mediating Role of Social Responsibility. Journal of Nursing Education. [Internet] 2017 Jun 10;6(2):61–70. [citado em 11 nov. 2023] Disponível em: https://jne.ir/article-1-831-en.html

26. Busch IM, Saxena A, Wu AW. Putting the Patient in Patient Safety Investigations. Journal of Patient Safety. [Internet] 2020 Mar;1. [citado em 12 nov. 2023] Disponível em: https://pubmed.ncbi.nlm.nih.gov/32195779/

Published

2025-09-15

How to Cite

Menegaz, M., Pinheiro, L., Mânica, R., & Albuquerque, A. (2025). Perception of doctors, patients and family members about the role of clinical empathy in promoting patient rights in the context of disclosure. Revista Contexto & Saúde, 25(50), e15803. https://doi.org/10.21527/2176-7114.2025.50.15803

Issue

Section

ORIGINAL ARTICLE