Care in primary health care for dignity at the end of life
DOI:
https://doi.org/10.21527/2176-7114.2024.48.14773Keywords:
Patient Care Team, Primary Health Care, Respect, Terminal Care, Palliative Care, Qualitative ResearchAbstract
This study aimed to describe the care carried out by professionals from Primary Health Care staff aiming at promoting dignity for people at the end of their lives at home and to understand the facilitating and hindering aspects. This is qualitative research with 12 professionals from five Family Health Strategies. Semi-structured interviews were carried out between October and November 2022, the results of which were organized in the Atlas.ti program and subjected to content analysis. The study made it possible to describe the care provided by Primary Health Care professionals to promote dignity for people at the end of life. Participants were nurses, doctors, nursing technicians and community health workers, who reported that they did not frequently care for people at the end of life. The identification of these people in the service occurs through community health agents, medical records and direct search for the service by patients and family members. To try to promote dignity, home visits and referrals to health services are strategies to ensure longitudinality of care as well as welcoming, access to specialized staff and effective communication with those involved in care. Furthermore, it was possible to understand the facilitating and hindering aspects of care. Dialogue, qualified staff, insertion of family in care and staff monitoring are factors that facilitate dignity-centered care. Work overload, limited resources, weaknesses in communication and weakened family ties make it difficult to maintain the dignity of people at the end of their lives at home.
References
Fearne C. Deputy Prime Minister and Minister for Health. A National Palliative Care Strategy for Malta 2023-2033: public consultation document; 2023. 71 p. [Access 4 Jul. 2023]. Disponível em: https://cdn-others.timesofmalta.com/2002c53af5f939a8f8d981316813fe00e9642ea0.pdf
Naylor W. New Zealand palliative care glossary. Nova Zelândia; 2015. 30 p. [Access 1º Aug. 2022]. Disponível em: https://www.health.govt.nz/system/files/documents/publications/new-zealand-palliative-care-glossary-dec15.pdf
Sousa, LS; Pontes, ML; Pereira, RR; Leite, MAP; Nova, FALV; Monteiro, EA. Transição do idoso do hospital para o domicílio na perspectiva do cuidador/idoso: revisão de escopo. Acta Paul Enferm. 2023;36:EAPE0363:1-8. [Acesso em: 29 Jul. 2023]. Disponível em: https://www.scielo.br/j/ape/a/GDFpk5b3nDBN8JJsfKFbPYj/?format=pdf&lang=pt
Iahpc. International Association of Hospice and Palliative Care. Palliative Care Definition. 2019. Disponível em: [Access 18 Jul. 2022]. Disponível em: https://hospicecare.com/what-we-do/projects/consensus-based-definition-of-palliative-care/definition/
Souza HL, Zoboli ELCP, Paz CRP, Schveitzer MC, Hohl KG, Pessalacia JDR. Cuidados paliativos na atenção primária à saúde: considerações éticas. Rev Bioét. 2015;23(2):349-359. [Acesso em: 24 jul. 2022]. Disponível em: https://www.scielo.br/j/bioet/a/pL4wBmn56Nn5S9KZtBQYGSz/abstract/?lang=pt
Cordeiro FR, Griebeler Oliveira S, Luce Kruse MH. Cuidados em fim de vida fora do lar: considerações sobre o Brasil e a França. Revista científica de la Asociación de Historia y Antropología de los Cuidados. [Internet]. 2020;24(57):186-199. [Acceso 4 jul. 2023]. Disponível em: https://culturacuidados.ua.es/article/view/2020-n57-cuidados-ao-final-da-vida-no-domicilio-consideracoes-so
Abbagnano N. Dicionário de filosofia. 6. ed. São Paulo: Editora WMF Martins Fontes; 2012. 1.232 p.
Ministério da Saúde. Caderno de atenção domiciliar. 1. ed. Brasília, DF: Ministério da Saúde; 2012. 106 p. [Acesso em: 26 jul. 2022]. Disponível em: https://aps.saude.gov.br/biblioteca/visualizar/MTIxOQ==
Ministério da Saúde. Resolução n° 41, de 31 de outubro de 2018. Brasília, DF: Ministério da Saúde; 2018. [Acesso em: 28 jul. 2022]. Disponível em: https://bvsms.saude.gov.br/bvs/saudelegis/cit/2018/res0041_23_11_2018.html
Pols J; Pasveer B; Willems D. The particularity of dignity: relational engagement in care at the end of life. Medicine, health care, and philosophy. 2018;21(1):89-100. [Access 9 abr. 2022]. Disponível em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5814535/
Sampaio C; Renaud I; Leão PP. “A montanha-russa da insuficiência cardíaca”: a percepção de dignidade pelas equipes de enfermagem. Acta Paulista de Enfermagem. 2020;(33). [Acesso em: 9 abr. 2022]. Disponível em: https://www.scielo.br/j/ape/a/7wDRxpwfk5SDD5pG5Vgmt6L/abstract/?lang=pt#:~:text=A%20%E2%80%9Cviagem%20de%20montanha%2Drussa,enquanto%20negligenci%C3%A1%2Dlas%20os%20amea%C3%A7am
Fink-Samnick E. The Evolution of End-of-Life Care: Ethical Implications for Case Management. Professional Case Management, 2016;21(4):180-192. [Access 9 abr. 2022]. Disponível em: https://pubmed.ncbi.nlm.nih.gov/27231957/
Ho AHY; Chan CLW; Leung PPY; Chochinov HM; Neimeyer RA; Pang SMC; Tse DMW. Living and dying with dignity in Chinese society: perspectives of older palliative care patients in Hong Kong. Age and Ageing. 2013;42(4):455-461. [Access 9 abr. 2022]. Disponível em: https://www.researchgate.net/publication/235740532_Living_and_dying_with_dignity_in_Chinese_society_Perspectives_of_older_palliative_care_patients_in_Hong_Kong
Stãngle S; Buche D; Hauptle C; Fringer A. Experiences, Personal Attitudes, and Professional Stances of Swiss Health Care Professionals Toward Voluntary Stopping of Eating and Drinking to Hasten Death: A Cross-Sectional Study. Journal of Pain and Symptom Management, Nova York, 2021;61(2):270-278. [Access 9 abr. 2022]. Disponível em: https://pubmed.ncbi.nlm.nih.gov/32768556/
Guo Q; Chochinov HM; McClement S; Thompson G; Hack T. Development and evaluation of the Dignity Talk question framework for palliative patients and their families: A mixed-methods study. Palliative Medicine. 2018;32(1):195-205. [Access 9 abr. 2022]. Disponível em: https://www.researchgate.net/publication/321037295_Development_and_evaluation_of_the_Dignity_Talk_question_framework_for_palliative_patients_and_their_families_A_mixed-methods_study
Li YC; Feng YH; Chiang HY; Ma SC; Wang HH. The Effectiveness of Dignity Therapy as Applied to End-of-Life Patients with Cancer in Taiwan: A Quasi-Experimental Study. Asian nursing research, Singapura. 2020;14(4):189-195. [Access 9 abr. 2022]. Disponível em: https://pubmed.ncbi.nlm.nih.gov/32335317/
Polit DF; Beck CT. Fundamentos de pesquisa em enfermagem avaliação de evidências para a prática da enfermagem. 9. ed. Porto Alegre: Artmed; 2018. 456 p.
Creswell, JW. Projeto de pesquisa: métodos qualitativo, quantitativo e misto. 3. ed. Porto Alegre: Artmed; 2010. 296 p.
Tavares, CM. Capacitação de agentes de saúde no tratamento de pacientes paliativos em domicílio. Fortaleza: Universidade Federal do Ceará; 2019. 24 p. [Acesso em: 1º dez. 2022]. Disponível em: https://ares.unasus.gov.br/acervo/html/ARES/19816/1/CAMILLA_MENDES_TAVARES.pdf
Zerbeto AB; Carvalho L; Rossa TA; Paula, D. Capacitação de agentes comunitários de saúde: integração entre universidade e atenção básica. Revista Brasileira de Extensão Universitária. 2020;11(3):349-359. [Acesso em: 9 abr. 2022]. Disponível em: https://periodicos.uffs.edu.br/index.php/RBEU/article/view/11506
Justino ET; Kasper M; Santos KS; Quaglio RC; Fortuna CM. Palliative care in primary health care: scoping review. Rev Latino-Am Enfermagem. 2020;28:e3324. [Access 5 Dic. 2022]. Disponível em: https://www.scielo.br/j/rlae/a/HWx6CGNM9QFVMKPLt55NyyP/?lang=en
Donato SCT; Chiba T; Carvalho RT; Salvetti MG. Validity and reliability of the Brazilian version of the Patient Dignity Inventory (PDI – Br). Rev Latino-Am Enfermagem. 2021; 29:e3371 [Access 8 Dic. 2022]. Disponível em: https://www.scielo.br/j/rlae/a/49J5LVJg9JwdGmcnyXwhVXw/
Santos FEB; Martins ZS. A importância da visita domiciliar como estratégia de acompanhamento a pacientes atendidos em uma UBS no município de Mirador-MA. 2021. [Acesso em: 9 dez. 2022]. Disponível em: https://ares.unasus.gov.br/acervo/handle/ARES/23931
Silva TC; Fortes RC; Ferrão PA. Percepção de pacientes oncológicos quanto ao impacto da pandemia de COVID-19 frente ao diagnóstico e tratamento do câncer. Brazilian Journal of Development. 2022;8(1):6.508-6.532. [Acesso em: 9 dez. 2022]. Disponível em: https://ojs.brazilianjournals.com.br/ojs/index.php/BRJD/article/view/43179
Estrela FM; Cruz MA; Gomes NP; Oliveira MAS; Santos RS; Magalhães JRF; Almeida LCG. COVID-19 e doenças crônicas: impactos e desdobramentos frente à pandemia. Rev. baiana enferm. 2020;34:1-7. [Acesso em: 7 dez. 2022]. Disponível em: https://periodicos.ufba.br/index.php/enfermagem/article/view/36559
Soder R; Oliveira IC; Silva LAA; Santos JLG; Peiter CC; Erdmann AL. Desafios da gestão do cuidado na atenção básica: perspectiva da equipe de enfermagem. Enferm foco. 2018;9(3):76-80. [Acesso em: 8 dez. 2022]. Disponível em: https://pesquisa.bvsalud.org/portal/resource/pt/biblio-1028377
Neto JF; Braccialli LAD; Correa ME. Comunicação entre médicos a partir da referência e contrarreferência: potencialidades e fragilidades. Atas CIAIQ2018. 2018;2. [Acesso em: 8 dez. 2022]. Disponível em: https://proceedings.ciaiq.org/index.php/ciaiq2018/article/view/1769
Simões Â; Sapeta P. Conceito de dignidade na enfermagem: análise teórica de ética do cuidado. Rev Bioét. 2019;27(2):244-252. [Acesso em: 23 jul. 2022]. Disponível em: https://www.scielo.br/j/bioet/a/HTPhyJcwKYNDmygFFxDKVVM/?lang=pt
Freitas, JS; Caputo, MC; Teixeira, CF. Ser escutado, perceber que suas experiências importam, contribui para o resgate da dignidade do ser humano. Rev. Ciênc. Méd. Biol. 2023;22(1):113-122. [Acesso em: 29 jul. 2023]. Disponível em: https://periodicos.ufba.br/index.php/cmbio/article/view/52286/29334
Ministério da Saúde. Portaria nº 2.436 de 21 de setembro de 2017. Brasília, DF: Ministério da Saúde; 2017. [Acesso em: 28 jul. 2022]. Disponível em: https://bvsms.saude.gov.br/bvs/saudelegis/gm/2017/prt2436_22_09_2017.html
Gonçalves JE; Araújo VS. O psicólogo e o morrer: como integrar a psicologia na equipe de cuidados paliativos numa perspectiva fenomenológica existencial. Gestão e desenvolvimento. 2018;(26):209-22. [Acesso em: 6 dez. 2022]. Disponível em: https://revistas.ucp.pt/index.php/gestaoedesenvolvimento/article/view/663
Rodrigues DMV; Abrahão AL; Lima FLT. Do começo ao fim, caminhos que segui: itinerações no cuidado paliativo oncológico. Saúde debate. 2020;44(125):349-361. [Acesso em: 9 dez. 2022]. Disponível em: https://pesquisa.bvsaludnão.org/portal/resource/pt/biblio-1127446
Mendonça MH; Silva MAM. Vida, dignidade e morte: cidadania e mistanásia. Ius gentium. 2014;9(5):151-190. [Acesso em: 9 dez. 2022]. Disponível em: https://www.revistasuninter.com/iusgentium/index.php/iusgentium/article/view/150
Frossard A. Os cuidados paliativos como política pública: notas introdutórias. Cad EBAPEBR. 2016;14:640-655. [Acesso em: 9 dez. 2022]. Disponível em: https://www.scielo.br/j/cebape/a/rPmtKfqybLTXdJMTj9hZrvs/abstract/?lang=pt
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Revista Contexto & Saúde

This work is licensed under a Creative Commons Attribution 4.0 International License.
By publishing in Revista Contexto & Saúde, authors agree to the following terms:
The works are licensed under the Creative Commons Atribuição 4.0 Internacional (CC BY 4.0) license, which allows:
Share — to copy and redistribute the material in any medium or format;
Adapt — to remix, transform, and build upon the material for any purpose, including commercial.
These permissions are irrevocable, provided that the following terms are respected:
Attribution — authors must be properly credited, with a link to the license and indication of any changes made.
No additional restrictions — no legal or technological measures may be applied that restrict the use permitted by the license.
Notes:
The license does not apply to elements in the public domain or covered by legal exceptions.
The license does not grant all rights necessary for specific uses (e.g., image rights, privacy, or moral rights).
The journal is not responsible for opinions expressed in the articles, which are the sole responsibility of the authors. The Editor, with the support of the Editorial Board, reserves the right to suggest or request modifications when necessary.
Only original scientific articles presenting research results of interest that have not been published or simultaneously submitted to another journal with the same objective will be accepted.
Mentions of trademarks or specific products are intended solely for identification purposes, without any promotional association by the authors or the journal.
License Agreement (for articles published from September 2025): Authors retain copyright over their article and grant Revista Contexto & Saúde the right of first publication.